Congress Wants To Hear From You! 3 Ways You Can Help...
We hope you will participate in our
ongoing advocacy campaigns to increase awareness and funding for HG.
You can help us in
many ways.
Let your voice be heard so women with HG can find help, hope and healing.
[More info from the briefing to be posted here soon. Please check back.]
Option 1 - WRITE
YOUR LOCAL CONGRESSIONAL REPRESENTATIVE
 The
HER Foundation is spreading the word on Capitol Hill about the need
for
research and awareness, and we need your help. Please
call, email, fax, or write your local Congressman a letter about how
HG
has impacted your life and how we need government's help to fight this
disease. If you reside in districts of either Representatives Xavier
Becerra (CA-31) or Dave Weldon (FL-15) who sponsored this event, please
also express your appreciation for their support.
Option 2 - MAKE
A DONATION TODAY
 Congress
wants to know how many people "care about this cause," and the best measurement
is the number of individual contributors - even if you can only donate
a few dollars.
USC / HER Foundation Proposed Research
Topics ($2.5 million required)
- Maternal/Fetal death (associated meds, complications, cause, etc.)
- Rare Complications (maternal and fetal)
- PICC/TPN complications, effectiveness & fetal outcomes
- Trauma after HG (PTSD)
- Cognitive effects & treatment after HG (maternal, fetal)
- Intrauterine programming (endocrine, emotional)
- Twin study Pedigree study (maternal and paternal lines) **
- Genetic link (DNA analysis)**
- Wernicke's Encephalopathy
- Attitudes of health professionals
- Modes of nutritional support
- Long- and short-term fetal disorders (triple A, neurodevelopmental/behavioral
disorders)
- Effects of HG on family (relationships, child trauma)
- Long-term health issues of HG (autoimmune, musculoskeletal, metabolic)
- Treatment strategies/outcomes
**Project has started
Publications & Misc Projects:
- Improve accuracy of general population books on pregnancy (e.g. What
to Expect, Pregnancy Handbook)
- Protocol for nutritional supplementation (criteria, duration)
- Assessment forms for health professionals
- Multilingual brochures
- Continuing Education for nurses
- Side-effects of meds
- Patient perceptions of prenatal care with/without HG
- Health professional attitudes & beliefs about HG
- HG management
- HG treatment protocol
- Survey Research Summaries
- HG & Foundation Awareness
- HG Symposium to link/educate health professionals & patients
- Abnormal outcomes Database (Maternal & Fetal)
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Updated on:
Apr. 08, 2008 |
