HG study-email now, participate later

Moms with HG in their 2nd trimester.

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HG study-email now, participate later

Postby mfejzo » Jul 13, 2007 7:18 pm

I am deeply moved by those of you who have contacted me from your hospital bed to participate in our study. Having suffered from HG twice, I know it is nearly impossible to motivate when getting through each day is such a struggle. I wanted to let those of you who are currently suffering know that you or a loved one can contact me at nvpstudy@usc.edu and just put in the subject line or text "HG NOW" and that way I can put your email address in our database and contact you in the future when you are feeling better to officially enroll you in the study. We need 1,000 participants who have had HG treated with iv or tpn or feeding tube to discover the biological cause and hopefully cure for HG and we currently have 316 participants. Each one of you is needed to help bring us that much closer to the cause and cure!
Sincerely,
Marlena nvpstudy@usc.edu
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Postby IslandDreamer » Jul 31, 2007 9:13 pm

bump
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Everyone counts!

Postby mfejzo » Nov 13, 2007 11:24 pm

Hi all. We hit the 400 mark---but we need 1,000 of you out there!!!) We really need everyone who has had HG to participate to find the biological cause of HG. If you are too sick to participate now, please have a caretaker email me (nvpstudy@usc.edu) with your contact email and put HG NOW in the subject line so I can get you in the system and contact you when you are feeling better. Please spread the word about the study by passing my email address out to your nurses and obstetricians and any friends with HG. You do not need to currently be pregnant to participate, you just need to have suffered from HG treated with iv hydration at least once. There is no cost or travel to participants living in the US. The survey can be filled out online and we will send you a kit in the mail to collect your saliva. This study is the first step to finding the cure for HG. Please help make a difference so the next generation doesn't have to suffer like we did.
Sincerely,
Marlena Schoenberg Fejzo, Ph.D, nvpstudy@usc.edu
HG Researcher and 2X HG sufferer
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PLEASE PARTICIPATE AND SOME NEWS!

Postby mfejzo » Dec 08, 2007 12:43 am

Seasons Greetings Everyone! Please think of our future HG sufferers (our daughters and grandaughters) this holiday season and participate in the HG study that will help us find the biological cause of HG and bring us one step closer to putting an end to the misery! Thank you to all of you 426 participants-each of you is bringing us baby steps closer and are a critical piece of the puzzle that is HG!

I also wanted to let you know that we have isolated DNA from over 100 of you HGers and your friend controls and are almost ready to start some preliminary testing of candidate genes. I will keep you posted on the research forum of any results. Also, we are almost done with the online survey and you will be hearing from me, hopefully before the end of January, so I can let you know the link to it on the HER website.

I know it is a busy time of year for everyone, so I appreciate all of you who have contacted and followed through with the study! For those of you who are ill, please email me at nvpstudy@usc.edu and put "HG NOW" in the header and I will put you in my file and contact you in six months when you will hopefully be feeling better.

Happy Holidays!

Marlena (PLEASE CONTACT: nvpstudy@usc.edu)
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Postby Atsie » Mar 25, 2009 7:18 pm

Bump (pretty sure the study still needs people)
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YES! HG study still needs participants!

Postby mfejzo » Mar 26, 2009 8:01 am

Currently we have 776 HGers and 269 controls. We need 1,000 of each and not everyone has followed through, so thank you for bumping! Everyone counts to put an end to this devastating disease!
Marlena nvpstudy@usc.edu (2X HGer and scientist)
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Postby 2rowdyboys » May 07, 2009 4:41 am

Just sent you an email.
Jodie
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Postby Sawada » Aug 15, 2010 2:22 am

Do I need to live in ithe US to participate?
Lara

Mum to Aya (Feb 2007), and due Feb 2011
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Postby aaronsmommy » Aug 15, 2010 10:16 am

You do not need to live in the US to participate. If you live outside the US, you do have to be willing to cover the costs of postage for your saliva samples for you and your control, and the phone call for consent.
Send an email to Marlena and she will explain the details. She's busy the next few weeks, so it will probably be September until she is able to reply.
Aimee

Aaron 12/4/02
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Just sent you an email!

Postby shantelp » Aug 24, 2010 2:42 pm

I just sent you an email. I'm pg with 3rd hg. Let me know how I can help!!!
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